First Official blog from Haley's mom

Hello everyone, and welcome to our blogging experiment.

If you follow our CB sites, you may have read that we are beginning a blog here on the Foundation website.

Although our posts will continue to have the same personal component you are used to, we are going to try and be "topical" and relevant as well.

There is so much writing talent out there, we will occasionally be inviting "guest bloggers" to weigh in on a topic hat may be special to them.

We will be blogging each Monday (or before) for the week. Our first topic, is organ donation. Something, both Lisa and I know something about.

On October 1, 2005. my sweet, beautiful, talented, little girl became a statistic. One of the 118 people who died that day waiting for an organ transplant.
How it hurts me to think of her that way. As a number on a list. And yet that is what her life, and her death hinged on.
Beause of the way her disease presented, because of the way her smart little body compensated, because of the unusual presence of a second illness, Haley didn't fit onto the list the way she was supposed to, with the sickest going to the top. She was penalized for being unusual. A penalty that cost her her life.
And I hate the system. Make no mistake. I find nothing "fair" about the way organs are shared in this country. BUT, and this is a big one......IF everyone was an organ donor, the list, the system wouldn't even matter.
We, the people, have the power to fix this.
There WAS a treatment available to save our daughter...how sad that there just wasn't a liver.

This tragedy replays itself every single day as mothers and fathers lose their children, children lose parents, spouses lose each other. We have it in our power to fix this.

And, it isn't just solid organ transplants, but tissue and, of course bone marrow. These things literally save lives.
Find your bone marrow registry...if you don't know where to go...start with the red cross.
Sign your organ donation card, and TELL everyone you want to be a donor.
The life you could save is important, it is a treasure to someone.

Other Foundation News:
Check out the new song on this site :
"A Voice Above the Crowd"
written by Steven Wagner
music by Dan Robinson
Vocals Kim Miller
This song was written for Haley weeks after she died, it captures her life and her spirit beautifully.
It, along with the other songs will be available on CD soon. I really mean it!! We are so close to having it finished!!

If you want your child to be on our upcoming prayer request page, please email me with first name and a link. We want to focus on kids in all phases of their journeys.

We are putting together a "Garage sale Committee". To be involved, email me. The sale will be late April, date to be announced.

Thanks to Bonnie for making this blog possible.

Thanks to all of you for coming by,
Cheryl
My Angel Haley